My Brain Is Not In My Little Toe Part Two
I went by ambulance to Royal Perth Hospital and my Mum and sister followed by car and I arrived there about 5:30pm and was met by the Neurological Registrar who I have to say was an obnoxious and arrogant Doctor. Seriously, he interrogated me for nearly three hours and asked so many questions in between me throwing up and screaming at him when he was doing his neurological examinations (which I understood he had to do, but it was the way he went about it when he knew I had RSD/CRPS nearly full body).
My Mum kept trying to step in and answer the questions for me and he started interrogating her as if she didn't know what she was talking about. It was like he didn't believe there was anything wrong even though he had the scans sitting in front of him. He decided to admit me but said he didn't think it was necessary to call in the Radiologist to do an emergency MRI. I was past caring anymore I just wanted the pain to stop and just wanted all the bright lights to be turned off and to be left to sleep or die or something. It was 9:45pm then and I told my Mum and sister to go home, there was no point hanging around.....Mum refused to leave at first but the nurses eventually talked her into leaving and they promised to call her if there was any developments.
At 10:30pm the Registrar came back in and said that he had spoken to the Consultant and he wanted an MRI done immediately and he rolled his eyes at me - I couldn't believe it....so at 10:45pm I went for my first MRI and OMG that was not a pleasant expereince - the noise and vibrations was horrendous and trying to stay still and calm - and half way through the CD they were playing stopped so the noise was more intense and then the Radiologist couldn't talk to me so I had no idea how long I was going to be in there - it was absolute torture.....
11:45pm I was finally taken to the Stroke ward and started on a heparin drip and it was a long night because they were doing neurological checks every 15 minutes. I eventually saw the Neurologist late morning and he was the nicest Specialist I have ever had the pleasure of meeting. He sat down and explained that I had 4 blood clots in my brain (Cerebral Venous Sinus Thrombosis) and they didn't to start dissolving them and work out why this had happened. Straight away he goes whats wrong with your eyes - and I explained the blurry vision and the shimmer effect and the intense pain and he looked at his Registar and said you didn't tell me about this and they left my room.......after that day the Registar treated me with a little bit more respect.
In the end they thought it was a combination of me being on the contraceptive pill and because of the Diabetes - they explained that because we don't know how long my sugar levels were out of control that having high blood sugar levels causes the blood to become thick and sticky and this had caused clots to form and I was very lucky to be alive. I was in hospital for just over 2 weeks and had a small stroke which caused right side weakness and effected my taste (everything tasted like fish and i mean everything.....btw I hate fish)
While in the hospital I saw the Endocrinolgy team and they said they got the test results back and it was definitely Type 1 Diabetes and I also showed positive antibodies for hypothyroidism so they would need to keep a close eye on that as I am jsut borderline at the moment. I experienced my first hypos while in the hospital - well apparently I did I had no idea it was happening - they were testing my sugars that many times a day and I remember one occassion I was on the phone to my Dad, anyways I stuck my finger out for the prick and the nurse went into a panic because it was 1.7 and I am like what and she said you have to get off the phone now and drink this stuff (some glucagon drink) and I am like why I feel fine and she says well you are not fine.......and this happened quite a few times while I was there and I had no idea each time. It was something I would have to keep an eye on in the future......
My Mum kept trying to step in and answer the questions for me and he started interrogating her as if she didn't know what she was talking about. It was like he didn't believe there was anything wrong even though he had the scans sitting in front of him. He decided to admit me but said he didn't think it was necessary to call in the Radiologist to do an emergency MRI. I was past caring anymore I just wanted the pain to stop and just wanted all the bright lights to be turned off and to be left to sleep or die or something. It was 9:45pm then and I told my Mum and sister to go home, there was no point hanging around.....Mum refused to leave at first but the nurses eventually talked her into leaving and they promised to call her if there was any developments.
At 10:30pm the Registrar came back in and said that he had spoken to the Consultant and he wanted an MRI done immediately and he rolled his eyes at me - I couldn't believe it....so at 10:45pm I went for my first MRI and OMG that was not a pleasant expereince - the noise and vibrations was horrendous and trying to stay still and calm - and half way through the CD they were playing stopped so the noise was more intense and then the Radiologist couldn't talk to me so I had no idea how long I was going to be in there - it was absolute torture.....
11:45pm I was finally taken to the Stroke ward and started on a heparin drip and it was a long night because they were doing neurological checks every 15 minutes. I eventually saw the Neurologist late morning and he was the nicest Specialist I have ever had the pleasure of meeting. He sat down and explained that I had 4 blood clots in my brain (Cerebral Venous Sinus Thrombosis) and they didn't to start dissolving them and work out why this had happened. Straight away he goes whats wrong with your eyes - and I explained the blurry vision and the shimmer effect and the intense pain and he looked at his Registar and said you didn't tell me about this and they left my room.......after that day the Registar treated me with a little bit more respect.
In the end they thought it was a combination of me being on the contraceptive pill and because of the Diabetes - they explained that because we don't know how long my sugar levels were out of control that having high blood sugar levels causes the blood to become thick and sticky and this had caused clots to form and I was very lucky to be alive. I was in hospital for just over 2 weeks and had a small stroke which caused right side weakness and effected my taste (everything tasted like fish and i mean everything.....btw I hate fish)
While in the hospital I saw the Endocrinolgy team and they said they got the test results back and it was definitely Type 1 Diabetes and I also showed positive antibodies for hypothyroidism so they would need to keep a close eye on that as I am jsut borderline at the moment. I experienced my first hypos while in the hospital - well apparently I did I had no idea it was happening - they were testing my sugars that many times a day and I remember one occassion I was on the phone to my Dad, anyways I stuck my finger out for the prick and the nurse went into a panic because it was 1.7 and I am like what and she said you have to get off the phone now and drink this stuff (some glucagon drink) and I am like why I feel fine and she says well you are not fine.......and this happened quite a few times while I was there and I had no idea each time. It was something I would have to keep an eye on in the future......
posted by Carolyn @ 9:34 am
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